With one week to go before celebrating my first 100 days, things are looking great. I am still taking quite a few medications including 3 different antibiotics, an anti fungal and an antiviral. Next week I will have a repeat CT scan of my chest to see if that dad gum organism is still growing in my lungs. The last chest X-ray still showed some opacities in the lungs. On Tuesday I will meet with my infectious disease doctor, Dr. Chemaly, to see if I can start getting off some of the antibiotics at least.
Last count, I am taking 12 different medications and 19 different pills each day! Ugh...my stomach still doesn't know how to digest all this at times.
I met a woman in the waiting room this week at MD Anderson who had a diagnosis of MDS initially.
She had a stem cell transplant almost 2 years ago. At about 18 months after the Stem Cell transplant she had a bone marrow biopsy that showed the MDS had returned. The MDS progressed into AML after only about a month later (I may have details a little confused) and was not responding to the chemo drug Dacogen. It brought to light the fact that we all need to support each other through prayers, and also that we just need to be thankful for each day God gives us here. No matter what your health is like, there are no guarantees!
I have been lucky to have my next door neighbor, Amy, as my "sitter next door"! We checked in with each other regularly through out the day and ran errands together. Amy went to MD Anderson with me on Wednesday and My sister in-law, Claire, was able to go to my PA appointment with me on Thursday. I am so grateful for all the help I have received during these last 93 days!
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